I’m emotionally bankrupt today. After a week of waiting for the right palliative drugs to arrive for my mother, we are still waiting and I’m spent. It is mind numbing to me that in the middle of a pandemic, chemists can close for 4 days while people are literally struggling to breathe.
It is unbearable that in the hour of my mother’s greatest need, I feel that we have failed her. I avoid anger for now, but I know it will come eventually and consume me. It is incomprehensible to me in a civilised society that elected officials should think it is acceptable to write off the deaths of thousands of elderly people as some sort of corona virus collateral damage that we all accept. We won’t and we can’t.
It is unthinkable that people who are paid £8 an hour or less are expected to be on the frontline doing 12 hour shifts in care homes helping people to die with dignity and comfort while MPs think they need an additional £10,000 to work from home-doing what, nobody knows. Worse, we don’t fight against this injustice, we just let it go through as if it is right and fair. It isn’t.
In the middle of this personal despair and grief, I find it ridiculous that the same MPs are making noises about schools completely re-opening while they have closed parliament because of the risk of spreading corona virus. After 35 years working in schools, I can accurately say it is impossible to social distance in a school with 250-1500 children. The consequence of this potential decision is too much for me to deal with at present so I stop reading the news. I fill my work time with recruitment, rotas and planning.
I fill my personal time with things I’ve never done before like baking which is strangely soothing. I stop myself looking at old letters and photos because I can’t do that yet. I finally let my anger surface in the oddest way as I crack up after 2 days of trying to do a jigsaw puzzle and throw it back in the box. Patience is not a virtue shared by me or my mum. The futility of it all lands heavily at times and I struggle to concentrate on reading or watching TV.
Another day passes and after yet another terrifying call from the care home and an exchange with a paramedic, we finally have the drugs and the authorisation in place. Who knew how wonderful paramedics are. Who knows how they can be so calm, kind and reassuring to relatives like me despite the horrors they are facing. God bless you Alex. I’ve dealt with 3 different young paramedics in the space of a month and I’m humbled by the care and dignity they’ve awarded my mum.
The care home staff make sure we get to see mum on her birthday with new technology they’ve had to get their head round on top of everything else. They keep us updated and we know that if we cannot be there, there is no one else we’d trust more to care for mum. I’m not sure how we will ever repay them for their courage, their kindness to us and for the love they have shown my mum.
I’ve created an unfortunate new phrase to sum up these passing days. I call it grief limbo. It’s lying in the wings, it’s in the corners of your mind, silently waiting, it chokes your heart and your eyes fill with tears without warning. You don’t want the limbo to end because of what it will bring so we hold still and wait. Another day goes by.